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Monday, June 20, 2016

Leaps and Bounds

Hey Everyone, 
This is my third time to start writing this post. I have been very occupied and when Nolan is asleep I am asleep. Nolan is doing so great. We couldn't ask for better. I hope everyone had a wonderful weekend and a happy Father's Day. All the days have kind of run together to me. I will do my best to recap the last three days. 

Saturday was our last day in the PICU. Just 2 days out from surgery. So amazing. He was excited about his wagon ride. He did not want to get out of the bed to get in there though. He was very sore at that time.

Waiting to go to the floor. 

He was able to smile after the move 

The first night on the floor he did very well. Nolan slept very good. His heart rate was kind of all over the place. It still is when he sleeps. We are praying it resolves on its own. He also does not want to take any medicine by mouth. We have been able to work it out the best we can.  All of the nurses, doctors, and respiratory therapist have been so sweet to all of us. Nolan told his nurse yesterday, "thank you for my present (she didn't give him one 😂) and thank you for my Tylenol." He asks everyone that listens to his chest to listen to his back too. He wants very thorough assessments. This boy is something. 

Yesterday, we let Nolan get out of the bed. It has been on since then! I figured it would take more than 3 days before he could really walk. He does not want to stay in his room at all. We have been in the play room, walking the halls, watching the elevators, and outside! Isn't God's work amazing? Nolan is feeling better every hour. Here are some pictures from the last two days. 


Coloring in bed yesterday. We can't keep him in bed now. 

Getting out of bed the first time. Nolan did not suck his fingers the first two days after surgery. We thought he forgot about them. He found them!
He calls this strolling. He says he has to stroll 2 miles like nene does at home.


He can see "the Jackson" from the Windows by the playroom. ( the Cabot Lodge)

Playing hungry hungry hippos
Painting was fun ❤️
Making music. I wish I could share videos. He plays a violent version of old McDonald. 


We enjoyed the fresh air today. Nolan got to see a helicopter take off of the roof. 

We are back in the room watching Frozen again. I've never seen one movie this many times. Thank you so much for keeping us in your prayers. We are so thankful. We are not sure how much longer we will be in the hospital, but we are sure you can't keep a good man down. 

Joshua 1:9

Oh give thanks to the Lord; call upon his name; make known his deeds among the peoples! Psalm 105:1 

2 comments:

  1. Thanks for the update! He is so precious:)

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  2. Always praying for you and Nolan! God is good and I am glad that he is recovering!! Love you guys!
    Cathy

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